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UPDATE: 2024 FOD/OAA Family Forum June 28 – 29, 2024 in Pittsburgh!

Updated: 6 days ago



2024 FOD/OAA Family Forum ~ June 28-29, 2024

UPDATE July 7, 2024: THANK YOU to all our Volunteers (especially Gwen Abele , Brenda Hoffman-Goodman, Shelly Budz, and Megan McCarthy ) and FOD Families, and Kathy Goodwin Stagni and Erin MacLean of OAA, for planning and attending our FOD/OAA Family Forum in Pittsburgh June 28-29th ~ what a wonderful time!


It was great to meetup with 'old' friends and create new ones and to hear what's new in the FOD world. We are was so thankful to our Sponsors and Dr Jerry Vockley, Dr Mark Korson, Dr Melanie Gillingham, Dr Stephen Kahler (we MISSED YOU in person!), Aly Smith, Kristen Sheffler and Nadene Henderson for taking time out of their weekend to come to the Friday night Reception and then speak on Saturday!


Our Families are determined to keep this going so when we create a 'Forum committee' to take over the responsibilities of planning etc, we may be able to continue with this more intimate and valuable resource.


Our Speakers' Presentation pdfs are posted below and soon I will post some pics of our wonderful time together ~


 

We are pleased to be collaborating once again with the Organic Acidemia Association ~ Join us for an exciting and informative FOD/OAA Family Forum! This in-person event will be held at the Courtyard by Marriott (rebranded after June 25th, formerly The Wyndham) in Pittsburgh, PA, USA.


This Forum provided opportunities to Network/Share/Support with other FOD Families and hear our expert Speakers on various FOD topics ~ here is our Agenda and PDF Presentations


OAA-2024-FOD-Program-DRAFT Final
.pdf
Download PDF • 7.75MB

SPEAKER PRESENTATIONS:

Dr Jerry Vockley, MD, PhD Keynote

Dr Jerry Vockley, MD, PhD: New Therapies for FAODs (title on1st page of pdf is not correct)

Aly Smith, MS, RD, LD, CNSC & Kristen Scheffler, RD, LDN, CNSC: Thinking Beyond Fat: Other foundations of nutrition for children and adults with FAODs

Dr Melanie Gillingham, PhD, RD: Oral Ketones: a potential treatment for all


Forum Pictures (coming soon)



 

To kick off the Family Forum there will be a Reception on Friday night, June 28th followed by Presentations and a Professional Panel on Saturday, June 29th, 2024. Get ready for engaging discussions and networking opportunities!


* No charge for Families to register. However, you are responsible for your own travel and hotel costs. We have some scholarships available to help with those costs ~ see link below.

Apply for an FOD Scholarship to help with Forum costs (ie., travel, hotel etc) ~ please complete the application online. Maximum Scholarship is $500. As of May 10th, all Scholarships have been awarded.


Families and Professionals please Register for our Forum and Make a reservation at the Wyndham Pittsburgh University Center. The Wyndham is rebranding and after June 25th it will be called Courtyard by Marriott. Rooms are $149/night plus tax – you can choose 1 King or 2 Double beds. DEADLINE for the block room rate is JUNE 5th!


We have a block of rooms a few days before and after our event so if you want to make it a vacation please do! Confirm the price for ALL your days. Let us know if the block fills up and we can possibly renegotiate more rooms, if available, with the hotel. Please check their Cancellation policy to avoid cancellation charges.


If you know you cannot come after reserving a Hotel room or Registering for the Forum, please cancel BOTH the Hotel reservation AND the Forum Registration so others can register. Your links to edit your registration or reservation should be in your Confirmation emails.


Looking forward to seeing you next June in Pittsburgh!

​Deb Lee Gould, MEd

Director, FOD Family Support Group

deb@fodsupport.org

517.381.1940



bridges in pittsburgh

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ABOUT US >

FODSupport.org is a worldwide resource for families, friends, clinicians, researchers and others who would like to support, educate and provide a forum for those whose lives have been touched by a Fatty acid Oxidation Disorder.

FOD Group has earned Gold Transparency standard Seal from Candid for 2024 (older name Guidestar)

CONTACT >

517-381-1940

[8am - 8pm EST every day]

deb@fodsupport.org

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