We have created a partnership with Rare Patient Voice, LLC, that offers our Family members a chance to have their voices heard via “surveys and interviews to improve medical products and services.” Here is the FOD link. And it also is a
Our 1st FOD Awareness Month was JULY 2012 and we were also highlighted on July 15, 2013 honoring Kristen and Kevin in the USA Today Life Charity Spotlight section. For our 2017 Banner we honored Chelsea (1992-2016,LCHAD) and Josh (14 yrs, MADD/GA 2 from Australia). And for 2019
As we attend Conferences and expos, our new FOD Banner will help create awareness and educate many about FODs and NBS ~ thank you to MCAD dad, Keith Widmann for designing our banner!