• Carnitine Palmitoyl Transferase II (CPT 2)
• CPT 2 Google Networking Group
• Organic Acidemia Association (OAA)
• International Organization for Glutaric Acidemia 1 (GA1)
• MitoAction-Mitochondrial Disease Action Committee
• United Mitochondrial Disease Foundation
• Glycogen Storage Disease (US)
• Children Living with Inherited Metabolic Disease (CLIMB)
• Italy~Inherited Metabolic Diseases(use translate link)
• National Urea Cycle Disorders Foundation
• Mothers United for Moral Support, Inc. (MUMS)
  (National Parent-to-Parent Network Newsletter)
• Save Babies Through Screening Foundation
• Children's Mitochondrial Disease Network
• CureTheProcess Campaign
• Eli's Angels
• Maple Syrup Urine Disease Family Support Group
• United Leukodystophy Foundation (website) / (email)
• Hunter's Hope (krabbe leukodystrophy)
• James W Lazzaro Foundation (VLCAD) - email
• The Collin Dieter Gerstlauer Foundation for Metabolic Disorders
• Georgia Galactosemic Moms
• Sigma-Tau Pharmaceuticals, Inc.
• Ross Products Division of Abbott Laboratories
• Vitaflo - Unique Foods for Individuals with Unique Needs
• American Liver Foundation
• National PKU Alliance
• Metabolic Dietary Disorders Association ~ Australia
• Regions 1-7 Newborn Screening and Genetics Collaboratives - Family and Professional Resources in the US
• America's Compounding Center (takes out-of-state orders for riboflavin, coQ10, drug prescriptions etc and accepts most insurances, except most state Medicaid)

Informational Sites for Metabolic Disorders

• PubMed (search medical article database)
• On-Line Mendelian Inheritance in Man (OMIM)
• National Institutes of Health (NIH)
• Society for the Study of Inborn Errors of Metabolism (SSIEM)
• Genetic and Rare Disease Information Center (via email/phone)
• National Organization for Rare Disorders (NORD)

Bereavement Resources

• The Compassionate Friends
• Genesis Bereavement Resources
• Griefnet
• National Center for Grieving Children and Families
• Center for Coping
• Grief Support/Consults for the Death of a Child (one-on-one via email or phone, or face-to-face for local MI Families) with Deb (Brochure), FOD Director. Also refer to www.bereavedparent.com
• Grief Intake Form - Submit online for Local face-to-face support and for online email or phone support as well]