• Carnitine Palmitoyl Transferase II (CPT 2)
• CPT 2 Google Networking Group
• Organic Acidemia Association (OAA)
• International Organization for Glutaric Acidemia 1 (GA1)
• MitoAction-Mitochondrial Disease Action Committee
• United Mitochondrial Disease Foundation
• Glycogen Storage Disease (US)
• Glycogen Storage Disease (UK)
• Children Living with Inherited Metabolic Disease (CLIMB)
• Italy~Inherited Metabolic Diseases(use translate link)
• National Urea Cycle Disorders Foundation
• Mothers United for Moral Support, Inc. (MUMS)
  (National Parent-to-Parent Network Newsletter)
• Save Babies Through Screening Foundation
• Children's Mitochondrial Disease Network
• Eli's Angels
• Maple Syrup Urine Disease Family Support Group
• United Leukodystophy Foundation (website) / (email)
• Hunter's Hope (krabbe leukodystrophy)
• James W. Lazzaro Foundation - VLCAD (email)
• Sigma-Tau Pharmaceuticals, Inc.
• Ross Products Division of Abbott Laboratories
• Vitaflo - Unique Foods for Individuals with Unique Needs
• American Liver Foundation
• The Barth Syndrome Foundation
• Metabolic Dietary Disorders Association ~ Australia
• Regions 1-7 Newborn Screening and Genetics Collaboratives - Family and Professional Resources in the US

Informational Sites for Metabolic Disorders

• PubMed (search medical article database)
• On-Line Mendelian Inheritance in Man (OMIM)
• National Institutes of Health (NIH)
• Society for the Study of Inborn Errors of Metabolism (SSIEM)
• Genetic and Rare Disease Information Center (via email/phone)
• National Organization for Rare Disorders (NORD)

Bereavement Resources

• The Compassionate Friends
• Genesis Bereavement Resources
• Griefnet
• Cherish Corner
• National Center for Grieving Children and Families
• Center for Coping
• Grief Support and Consultation Services for the Death of a Child or Loved One (one-on-one via email or phone) with Deb, FOD Director [Grief Intake Form]