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Our Group began in 1991 as
the MCAD Family Support Group and then in 1996 we expanded to include
all of the Fatty Oxidation Disorders (FODs). Family Stories of LCHAD,
VLCAD, CPT and other FODs begin with the June 1995 issue. In our early years, when each new Family contacted us, we used to mail out a Family Packet of
past newsletters ~ but, we have discontinued mailing newsletters in the US and abroad due to high copying and postage costs. That is why we now offer all of our past and present newsletters online.
Please be sure to read the most
current newsletters and articles on our website to get the most
updated information on FOD diagnosis, Newborn screening, treatment
recommendations, research, and names of FOD researchers/Labs, as
well as our touching Family Stories that really connect us all.
Choose a newsletter by clicking
on any link to the right. Right-click on any link and choose "save
as target" to download a newsletter to your computer.
Newsletters will be added on
a regular basis as they become available. [Please
Note: The FOD Group has a NEW address in Michigan
(click Contact Us on the right sidebar) so disregard the NC address
on past newsletters and online forms. Additionally, my
(Deb) AOL and triad.rr email address listed on older newsletters is no longer
active ~ please update with deb@fodsupport.org - and as a backup fodgroup@gmail.com]
Please Note for Downloading and Saving PDF
Files: If you already have Adobe Acrobat Reader (download FREE
from here or on our Online Forms page), double
click the name of the PDF file in order to open it and read online.
However, if you double click and a blank screen comes up, please click
on your browser's refresh button. If it is still blank, try saving
the PDF to your computer to view offline by RIGHT clicking on the
document name and save it to your desktop/computer by choosing 'Save
Target As' and following the directions.
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