Join our FOD Email List! What a great way to connect with other FOD families (some professionals too) across the world and share your questions, concerns and family stories about dealing with an FOD. Note: Please be aware that we are a very focused List SPECIFIC to FODs (as a primary or secondary diagnosis) and not a broad based List dealing with various other mitochondrial disorders. There are several other Lists and Message Boards available on the internet that are not as focused as this List and are open to the public. Our private List is open to FOD Families (and family members) and professionals working with FOD Families.

Our List is for emotional and practical support for FODs only.

Additionally, messages are sent worldwide to over 460 members. We have a very diverse group of members as far as ethnic background, religious beliefs, political beliefs, etc ~ and that is to be respected. However, this List is for FOD related issues ONLY (that can entail topics such as, but not fully inclusive - symptoms, treatments, therapies, insurance, educational and nutritional type issues, grief, dealing with a child's outbursts that may be related to the disorder, etc) and is not a faith-based public religious or political forum. There are other internet Lists for such a purpose. Please keep that in mind when posting your FOD concern or question. Discussing God and other personal religious beliefs and comments are one thing (and not for THIS List) — stating that prayers are being said for someone is another ~ just as there is a difference between religion and spirituality.

As stated above and in our List rules - this topic is not up for discussion. Members that continue to disregard the List rules will not be able to post until your message comes through me first. If you want to discuss/state religious beliefs you will have to find another List on the internet – this is NOT the one. Keep the personal religious comments OFF the main List and email individuals directly if you want to convey your religious beliefs.

This List is for SHARING EXPERIENCES and NOT for preaching one method (of treatment, behavior etc) over another or for berating someone else's comments or opinions. It is NOT a forum for religious or philosophical or political or childrearing arguments! If you are determined to incite arguments versus having MATURE and RESPECTFUL DISCUSSIONS, then you will be removed from the List.

Our Email List is truly a 'Communication Network' for seeking and sharing information on a variety of issues (ie., new research or treatments, NBS etc), but mainly for much-needed emotional support. Please note that 'Registering with our Group' on the 'Contact Us' page is DIFFERENT than the sign-up for the Email List, which is in the section below.

Many families feel like they are the only ones out there dealing with these rare disorders. Joining our email list below will SHOW you that you are NOT alone!

Subscribe to the FOD Family Support Group Email List

Email:

If you have questions or you want to sign up for our Email List please first 'Register for the Group' ~ if you have further questions/concerns please contact Deb. Our Email List is only open to FOD Families and Professionals for support and networking purposes. Create a google account before registering for our NEW List and please read our 'List Rules and Reminders' on the right sidebar. If you do not respond to Deb's email (if I don't recognize your address), you will not be activated for the List. Keep in mind there is a possible delay of 12-24 hrs from when you sign up until you're activated for the List. Read further info below. We also have 3 subGroups/Lists for various specific FODs. If you have not heard from me (Deb) in 2-3 days, please email me at fodgroup@comcast.net or deb@fodsupport.org for assistance. Some addresses or servers are not receiving email from my deb@ address for some reason or going into spam/junk files. Please add my above addresses to your safe list before you contact me. Main FOD Email List Webpage: http://groups.google.com/group/FODsupport [Once you're activated for the Main List, you can also sign on for the various subGroups for MCAD,VLCAD etc from the webpage above] Main FOD Email List Address: FODsupport@googlegroups.com

BEFORE SIGNING UP for the List ~ Please make sure to check your Mail Options so you can receive List-type messages. By default, most spam settings are set very high (ie., on AOL). Also, by default, any mail that is diverted to the spam folder is deleted immediately. AOL users (and possibly other servers) can go to 'Manage Mail' and click on 'Spam controls' to loosen them up a bit.

Then once you sign up, put the new FOD List address in your own address book and on your whitelist/safe addresses ~ you may also need to check your spam/junk mail file if you haven't received any messages in your Inbox.