2018 FOD/OAA International Metabolic Conference ~ Bloomington, MN

FOD Conference Info and Speaker Presentations

FOD Conference REGISTRATION is CLOSED!!! We filled our maximum sooner than we thought! If you would like to be placed on a Wait List please email

For all who are not able to attend our Conference July 6-7, 2018 at the Embassy Suites Minneapolis Airport, we will post the PowerPoint slides (converted to PDF Handouts for easier viewing ) from our Speaker presentations, as well our Sponsors, Agenda and brief professional biographies. 

The turnout for our 2016 Conference was phenomenal ~ we had over 300, our highest ever for the FOD Group and OAA! We hope to surpass that attendance # in 2018!

Our Speakers will share their expertise and knowledge of FODs and related medical, psychological, nutritional, family, educational, and newborn screening issues. Families will come away from the Conference with ALOT to think about, as well as the opportunity to connect with other Families around the world dealing with many similar issues. They also will have many opportunities to speak with our Professionals one-on-one and ask them a variety of questions.

  • 2018 Conference Speaker Agenda, Bios and Sponsors
  • 2018 Conference Pictures
  • 2018 Conference Ending Ceremony Video

Conference Info

2018 FOD/OAA International Metabolic Conference
July 2018


FOD Conference REGISTRATION is CLOSED!!! We filled our maximum sooner than we thought! If you would like to be placed on a Wait List please email

Our 2018 FOD/OAA International Metabolic Conference will be sponsored by Mayo Medical Labs and other valuable Sponsors and will be Bloomington, MN ~ the date is JULY 6-7, 2018 at the Embassy Suites Minneapolis Airport! You will need to make your Online Hotel Reservations EARLY because there is another major event in town on that date. If we fill all our rooms you may need to stay at a nearby hotel and come to the Embassy for the Conference talks. 

If you decide to call the Hotel at 952.854.1000, be sure to tell them it's for the FOD/OAA Conference - give them the Group code 'FOD' so you get our Room Block Discount - $129/night + tax for a king size bed or $139/night + tax for 2 Double beds. 

A block of rooms has been reserved for July 4, 2018 - July 8, 2018. The special room rate will be available until June 13th, 2018 or until the group block is sold-out, whichever comes first.

If you have special requirements (e.g., accessible, crib, etc.) please let them know when you call to make a reservation. No extra cost for refrigerators. Amenities.

Please make your Hotel reservations FIRST before completing the Online Conference Registration Form - some questions are dependent on whether you are staying at the Embassy or another hotel.

Online Conference Registration Form - for everyone age 3 and older (so we have accurate food counts). There is NO FEE for registering Families, but it is $50 for each Professional. It is easier to register and view the Form using a computer but there is an app for Eventbrite. You can register up to 6 in your Family at a time and 4 Professionals can register at one time. You can also cancel/update your registration from your confirmation link. IF you cancel PLEASE let Deb know so we can keep accurate food counts. Please complete before @ June 20th so we can give the Hotel our food counts.

Friday and Saturday Breakfast is included in the Hotel reservation ~ we will have a reserved room for Breakfast. Lunch will be served to ALL Registrants on Friday and Saturday. If you do not have a Embassy Suites Hotel Reservation, you will need a voucher for the Fri & Sat  breakfast and Fri night Reception - please note that on your Registration Form - there are questions for that.

 In Feb/March 2018, a draft agenda will be posted on and

You can view past Conference Agendas at

Our 2018 FOD/OAA International Metabolic Conference is for parents, family members, affected individuals, professionals and exhibitors that have an interest in Metabolic Disorders.

It is only through generous donations and sponsorships that the FOD Group and OAA are able to offer such an important opportunity every two years to Families and Professionalseager to learn more about our disorders. Our premier Sponsor/Host is Mayo Medical Laboratories 

If you are interested in helping our efforts as a donor or a Conference Sponsor please refer to each Group's website linked above or contact Kathy Stagni directly at or call 763.559.1797!

Fatty Oxidation Disorders and Organic Acidemias are a group of rare metabolic disorders whereby fatty acids and protein, respectively, cannot be broken down in the body to be used as energy, especially in times of fasting or illness, and are treated through dietary changes and medications.  When undiagnosed, severe medical complications and/or death can occur. 

The importance of our Family Conference is to allow our members to meet other parents and professionals and learn more about their own or their child’s rare metabolic disorder. The focus for this conference is for Families to learn more about the medical management, nutrition and the social needs of caring for yourself or a child with a chronic disorder, specifically those with rare metabolic disorders. On Friday, we will have two separate sessionsfrom 8-5pm - one for the FOD Group and one for the OAA Group and there will be a Friday Night Reception from 6-9pm for Families and Speakers. Saturday we will have a  joint FOD/OAA session from 8-2pm, Group pictures taken with our FOD and OAA Tshirts, and a Professional Panel Question & Answer time. We will end with a beautiful Ending Ceremony Video!

The conference is a wonderful opportunity for Families to meet each other and have the opportunity to speak with professionals on an informal level. Children are encouraged to attend the Friday night Reception and we offer a variety of snacks and drinks during the Reception. Friday and Saturday Hot Breakfast buffet (available to Registrants staying at the Embassy - others will need a Voucher from us) and the Fri Lunch buffet and Saturday Box Lunch and snacks are provided to all Registrants (everyone age 3 and older MUST be registered- age 2 and below eat free). There is a Friday Night Reception 6-9pm for all Families and Professionals.  Vouchers will be needed from us for those staying at other hotels/elsewhere. 


There is NO registration fee for FOD/OAA Family participants for the 2018 Conference - but you will still need to complete a Registration Form for each member (age 3 and older) of your family/party attending! If you decide to register using the paper form on our websites, please mail the form to Deb Lee Gould, PO Box 54, Okemos, MI 48805. You can register up to 6 persons at one time. 

Professionals $50 per registrant (ie, Drs, Genetic counselors, Dietitians etc) - pay via a credit card. One main contact can register up to 4 colleagues.  There is  30 day before the Conference Refund policy. If you decide to register using the printed Registration Form on our websites, please mail the form and a check (made out to OAA) to Deb Lee Gould, PO Box 54, Okemos, MI 48805.

Booth Exhibitors do NOT register on this site. Please contact OAA Director Kathy Stagni ( for booth fee amounts. All checks will be sent to Kathy Stagni (checks made out to OAA)  -   Kathy Stagni     9040 Duluth Street  Golden Valley, MN  55427

*** ANYONE age 3 and older MUST be registered. All sitters MUST be registered.***

This is to provide advance accurate numbers for meal preparations. 

Airport:  MSP Airport - Minneapolis/St Paul Airport


Here are some links for the Embassy Suites Amenities/Services and transportation options 

  • Complimentary shuttle service to MSP Airport and Mall of America
  • Hiawatha Light Rail directly across the street for easy access to downtown Minneapolis 

Travel:  Attendees are responsible for their own travel accommodations to and from the conference.  Speakers will coordinate through Deb and Kathy for both hotel and travel arrangements.

Meals:  The hotel chef will be coordinating with us to provide a wide variety of food options for conference meals (Friday Breakfast and Lunch, the Friday night Reception, and Saturday Breakfast and  Box Lunch  to include low-fat and low protein foods to accommodate our families' needs.  All other meals are your responsibility.  The online registration form will allow you to make a list of any special dietary requirements needed.  The hotel chef will make accommodations whenever possible. 

Child Activity Room:  We will have an activity room for children - however, each family will be responsible for providing someone to supervise their child(ren) (e.g., grandparent/sitters) and those persons must also be registered.  We are also looking for local volunteers to help in the room by providing drawing activities, games, videos, etc.  FOD children/sibs grade 2-5/6 will have a special session Fri and part of Saturday - limited to 20max. You can mark the Registration Form if your child/ren are interested in participating. Children are allowed in the conference sessions only IF they can do so quietly.  Disruptive, noisy children must be removed from the session as a courtesy to all other participants.  Older children and teens are encouraged to attend sessions. ANYONE age 3 and older MUST register. All sitters MUST also be registered.  This is to provide advance accurate numbers for meal preparations. 

Registration Form:  Online by JUNE 20 or by mail  by JUNE 10, 2018 (the regis form is above and on and
Printed forms [and Professional checks made out to OAA] can be mailed to:
Deb Lee Gould/FOD Group
PO Box 54 
Okemos, MI 48805



Our 2018 FOD Speakers


Speaker: Piero Rinaldo, MD, PhD

Mayo Medical Labs

Presentation: Keynote Address







Speaker: Christopher Boys, PhD, LP
Pediatric Neuropsychologist

Presentation to FOD Families:


Presentation to FOD & OAA Families:








Speaker: Susan Berry, MD






Speaker: Jerry Vockley, MD, PhD

Children's Hospital of Pittsburgh


Presentation: New Therapies for Fatty acid Oxidation Disorders









Speaker: Holmes Morton, MD

Presentation: Emergency Protocols and Q & A session









Speaker: Stephen Kahler, MD
Arkansas Children's Hospital









Speaker: Melanie Gillingham, PhD, RD

Oregon Health  & Science University

Presentation: FOD Nutrition Guidelines





















                                                            Hope to see you again in 2020!