The FOD Group website and online 'Communication Network' Newsletters are intended to be used as a worldwide resource for families, friends, clinicians, researchers and others who would like to support, educate and provide a forum for the sharing of ideas and concerns for those whose lives have been touched by a Fatty acid Oxidation Disorder.
We are an All Volunteer national and international support group specifically for Fatty Oxidation Disorders and a 501c3 non-profit corporation [Tax ID# 83-0471342] that raises funds for the training of new FOD Professionals and for future FOD Research, as well as for our daily operations, National Conferences, and probono face-to-face or skype Grief Support for Bereaved Parents, Families, and other adults living with loss from any cause.
Family Stories are shared, questions are answered, nutrition information is discussed, and medical and pharmaceutical updates are offered. You can also view and share our current FOD Brochure and Newsletter, as well as our archive of past newsletters for more information and stories. Additionally, we have videos on how our Group began and how FODs are newborn screened, diagnosed and treated.
If you'd like to become a member of our Group, please 'Join our Group' first ~ then you can also become a part of our very active google Email List and facebook Group of FOD Families/Familymembers and Professionals from around the world ~ come join us in supporting both our new and 'old' families living with these rare metabolic disorders!
PO Box 54 Okemos, MI 48805 Tax ID # 83-0471342
It will be ALL Day on Friday (8-5pm) and HALF DAY on Saturday (8am -12pm). Speakers and Topics
Conference Registration: Our eventbrite.com Registration Form (for anyone over age 5) for Families & Professionals is now active - this form is impt for determining meal counts. There is NO Conference registration fee for Families, but Professionals will pay $50 per person. Check here for updates after Jan 1, 2016.
Hotel & Conference: $120 per night (plus tax) for a double or king
Westin Westminster 10600 Westminster Boulevard Westminster, CO, 80020 Phone Reservation: 888.627.8448
Hotel Online Reservations: Guests can access the FOD/OAA link to make their reservation thru June 24, 2016 in order to get the reduced conference rate!
If you are interested in becoming a Conference Sponsor or Donor or Vendor for our July 2016 Conference please contact Kathy Stagni (OAA Director).