Welcome to the
FOD Family Support Group

The FOD Group website and online 'Communication Network' Newsletters are intended to be used as a worldwide resource for families, friends, clinicians, researchers and others who would like to support, educate and provide a forum for the sharing of ideas and concerns for those whose lives have been touched by a Fatty acid Oxidation Disorder.

We are an All Volunteer international support group and a 501c3 non-profit corporation [Tax ID# 83-0471342] that raises funds for the training of new FOD Professionals and for future FOD Research, as well as for our daily operations, National Conferences, and probono face-to-face Grief Consults for Bereaved Parents and Families in the East Lansing, MI area.

Family Stories are shared, questions are answered, nutrition information is discussed, and medical and pharmaceutical updates are offered. You can also view and share our current FOD Brochure and Newsletter, as well as our archive of past newsletters for more information and stories. Additionally, we have videos on how our Group began and how FODs are newborn screened, diagnosed and treated.

If you'd like to become a member of our Group, please 'Join our Group' first ~ then you can also become a part of our very active Email List and facebook Group of FOD Families/Familymembers and Professionals from around the world ~ come join us in supporting both our new and 'old' families living with these rare metabolic disorders!

What's New?

• UPDATE! Our July 2012 National Metabolic Conference is in Portland, Oregon! 2012 National Conference - Register Online Now!
• UPDATE! Our 1st FOD Awareness Month will be JULY 2012! Look for our banner ad in USA TODAY on July 19th under their Charity Spotlight section! Spread the word and be sure to check out our Awareness items to share with family & friends!
• Learn about FODs and how our Group began via our Videos
• Volunteers Needed: Newsletter Formatting, Family Fundraisers, Grant Writing ~ Contact Deb
• Deb offers local probono Grief Support for Bereaved Parents & other adults living with loss
• New England FOD Families: Study Recruitment ~ refer to Jan 2011 Newsletter for details
• Please share your Expertise! Needed for future Newsletters ~ Professional articles or summaries on your clinical work or research [Drs, RNs, nutritionists, genetic counselors, social workers etc]. Contact Deb.
• Donations are tax-deductible – we also now accept stock donations! Make a donation
• Coming soon ~ We are enhancing our Family and Professional Lists in order to have the most up-to-date networking info!
• As we attend Conferences and expos, our new FOD Banner will help create awareness and educate many about FODs and NBS ~ thank you to MCAD dad, Keith Widmann for designing our banner!
• Visit our Awareness Items page to purchase FOD bracelets, ribbon window clings, tshirts, ivPolePal and more ~ and our Donate page to find other ways to help raise funds for the FOD Group!